The Thalassemia Centre at Dubai Health Authority (DHA) organized a two-day training program for nurses from UAE and other Gulf countries, to help them gain the expertise required to deal with the challenges often faced while dealing with cases of hemoglobin disorder like thalassemia and sickle-cell anemia. Being hereditary and life-long diseases, nurses often have to deal with situations like preparing soon-to-be parents or new parents on the complications of dealing with their child’s disease, difficulties of chronic care, psychosocial aspect of the disease, blood transfusion, infection control and quality improvement. Conducted by leading experts from Thalassemia Centre, the program was highly successful amongst attendees.
“The program is a part of our continuous efforts to excel in the standards of care provided to patients and their caregivers in the region. These nurses face a variety of situations which require them to deal with medical, psychological and emotional needs of the patients. This training has helped them gain the required knowledge,” said Dr. Khawla Belhoul, Director of the Dubai Thalassemia Center.
The training program helped the nurses benefit through exchange of experience and knowledge transfer. The key topics addressed during the workshop were — medical overview of the disease process, psychological aspect of thalassemia, integrated clinical pathway, nursing challenges in chronic care, patient family education, blood transfusion program, chelation protocol in the center, methodology for quality improvement, infection control program and complicated cases.
According to Dubai Health Authority(DHA), one in 12 people carry the gene for Thalassemia, a blood disorder that reduces the number of normal blood cells in the body. A study conducted by the Centre for Arab Genomics Studies(CAGS) suggests that sickle-cell disease is highly prevalent in the Arab states with some of world’s highest frequency of the disease being found in Saudi Arabia (5.2%), Oman (3.8 %) and UAE (1.9%).
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